Serveur d'exploration sur la maladie de Parkinson

Attention, ce site est en cours de développement !
Attention, site généré par des moyens informatiques à partir de corpus bruts.
Les informations ne sont donc pas validées.

Living with a person who has parkinson's disease: The Spouse's perspective by stage of disease

Identifieur interne : 001E82 ( Main/Exploration ); précédent : 001E81; suivant : 001E83

Living with a person who has parkinson's disease: The Spouse's perspective by stage of disease

Auteurs : Julie H. Carter [États-Unis] ; Barbara J. Stewart [États-Unis] ; Patricia G. Archbold [États-Unis] ; Iku Inoue [États-Unis] ; Jeana Jaglin [États-Unis] ; Meg Lannon [États-Unis] ; Elke Rost-Ruffner [États-Unis] ; Marsha Tennis [États-Unis] ; Michael P. Mcdermott [États-Unis] ; Donna Amyot ; Ruth Barter [États-Unis] ; Lisa Cornelius [États-Unis] ; Carol Demong ; Judith Dobson [États-Unis] ; Jan Duff ; Judi Erickson [États-Unis] ; Nita Gardiner [États-Unis] ; Lisa Gauger [États-Unis] ; Peggy Gray ; Bernice Kanigan ; Barbara Kiryluk [États-Unis] ; Paula Lewis [États-Unis] ; Kathie Mistura [États-Unis] ; Teri Malapira [États-Unis] ; Mary Pay [États-Unis] ; Carol Sheldon [États-Unis] ; Linda Winfield [États-Unis] ; Kathy Wolfington-Shallow [États-Unis] ; Kim Zoog [États-Unis]

Source :

RBID : ISTEX:14FDC4D2301D29DFA44FF2248B14AE4E90C3B27E

English descriptors

Abstract

The objective of this study was to examine the experience of spouses caregiving for their spouse with Parkinson's disease (PD) and to determine whether their experiences differed by stage of disease. By using a cross‐sectional design and mail questionnaire data from 380 spouse caregivers across 23 sites of the Parkinson Study Group, key caregiver variables were examined by stage of PD. Three categories of variables‐caregiver role strain (10 measures), caregiver situation (four measures), and caregiver characteristics (four measures)‐were analyzed by using t tests with Bonferroni correction. Specific types and amounts of role strain accumulated as the disease progressed, and they differed significantly between stages (p < 0.05). In the caregiving situation, the mean number of caregiving tasks tripled by stage 4/5. Negative changes in lifestyle plus decreases in predictability in caregivers' lives increased significantly in late‐stage disease (p < 0.05). Caregiver characteristics of physical health and preparedness did not significantly differ across stages of disease. Depression was significantly higher by stage 4/5. Mutuality, the positive quality of the relationship as perceived by the caregiving spouse, declined beginning at stage 2. Caregiver strain is experienced across all stages of PD and accumulates significantly as the disease progresses. This study defines types and amounts of strain by stage of disease, which will be helpful in designing formal intervention trials to provide more effective help for spouse caregivers.

Url:
DOI: 10.1002/mds.870130108


Affiliations:


Links toward previous steps (curation, corpus...)


Le document en format XML

<record>
<TEI wicri:istexFullTextTei="biblStruct">
<teiHeader>
<fileDesc>
<titleStmt>
<title xml:lang="en">Living with a person who has parkinson's disease: The Spouse's perspective by stage of disease</title>
<author>
<name sortKey="Carter, Julie H" sort="Carter, Julie H" uniqKey="Carter J" first="Julie H." last="Carter">Julie H. Carter</name>
</author>
<author>
<name sortKey="Stewart, Barbara J" sort="Stewart, Barbara J" uniqKey="Stewart B" first="Barbara J." last="Stewart">Barbara J. Stewart</name>
</author>
<author>
<name sortKey="Archbold, Patricia G" sort="Archbold, Patricia G" uniqKey="Archbold P" first="Patricia G." last="Archbold">Patricia G. Archbold</name>
</author>
<author>
<name sortKey="Inoue, Iku" sort="Inoue, Iku" uniqKey="Inoue I" first="Iku" last="Inoue">Iku Inoue</name>
</author>
<author>
<name sortKey="Jaglin, Jeana" sort="Jaglin, Jeana" uniqKey="Jaglin J" first="Jeana" last="Jaglin">Jeana Jaglin</name>
</author>
<author>
<name sortKey="Lannon, Meg" sort="Lannon, Meg" uniqKey="Lannon M" first="Meg" last="Lannon">Meg Lannon</name>
</author>
<author>
<name sortKey="Rost Uffner, Elke" sort="Rost Uffner, Elke" uniqKey="Rost Uffner E" first="Elke" last="Rost-Ruffner">Elke Rost-Ruffner</name>
</author>
<author>
<name sortKey="Tennis, Marsha" sort="Tennis, Marsha" uniqKey="Tennis M" first="Marsha" last="Tennis">Marsha Tennis</name>
</author>
<author>
<name sortKey="Mcdermott, Michael P" sort="Mcdermott, Michael P" uniqKey="Mcdermott M" first="Michael P." last="Mcdermott">Michael P. Mcdermott</name>
</author>
<author>
<name sortKey="Amyot, Donna" sort="Amyot, Donna" uniqKey="Amyot D" first="Donna" last="Amyot">Donna Amyot</name>
</author>
<author>
<name sortKey="Barter, Ruth" sort="Barter, Ruth" uniqKey="Barter R" first="Ruth" last="Barter">Ruth Barter</name>
</author>
<author>
<name sortKey="Cornelius, Lisa" sort="Cornelius, Lisa" uniqKey="Cornelius L" first="Lisa" last="Cornelius">Lisa Cornelius</name>
</author>
<author>
<name sortKey="Demong, Carol" sort="Demong, Carol" uniqKey="Demong C" first="Carol" last="Demong">Carol Demong</name>
</author>
<author>
<name sortKey="Dobson, Judith" sort="Dobson, Judith" uniqKey="Dobson J" first="Judith" last="Dobson">Judith Dobson</name>
</author>
<author>
<name sortKey="Duff, Jan" sort="Duff, Jan" uniqKey="Duff J" first="Jan" last="Duff">Jan Duff</name>
</author>
<author>
<name sortKey="Erickson, Judi" sort="Erickson, Judi" uniqKey="Erickson J" first="Judi" last="Erickson">Judi Erickson</name>
</author>
<author>
<name sortKey="Gardiner, Nita" sort="Gardiner, Nita" uniqKey="Gardiner N" first="Nita" last="Gardiner">Nita Gardiner</name>
</author>
<author>
<name sortKey="Gauger, Lisa" sort="Gauger, Lisa" uniqKey="Gauger L" first="Lisa" last="Gauger">Lisa Gauger</name>
</author>
<author>
<name sortKey="Gray, Peggy" sort="Gray, Peggy" uniqKey="Gray P" first="Peggy" last="Gray">Peggy Gray</name>
</author>
<author>
<name sortKey="Kanigan, Bernice" sort="Kanigan, Bernice" uniqKey="Kanigan B" first="Bernice" last="Kanigan">Bernice Kanigan</name>
</author>
<author>
<name sortKey="Kiryluk, Barbara" sort="Kiryluk, Barbara" uniqKey="Kiryluk B" first="Barbara" last="Kiryluk">Barbara Kiryluk</name>
</author>
<author>
<name sortKey="Lewis, Paula" sort="Lewis, Paula" uniqKey="Lewis P" first="Paula" last="Lewis">Paula Lewis</name>
</author>
<author>
<name sortKey="Mistura, Kathie" sort="Mistura, Kathie" uniqKey="Mistura K" first="Kathie" last="Mistura">Kathie Mistura</name>
</author>
<author>
<name sortKey="Malapira, Teri" sort="Malapira, Teri" uniqKey="Malapira T" first="Teri" last="Malapira">Teri Malapira</name>
</author>
<author>
<name sortKey="Pay, Mary" sort="Pay, Mary" uniqKey="Pay M" first="Mary" last="Pay">Mary Pay</name>
</author>
<author>
<name sortKey="Sheldon, Carol" sort="Sheldon, Carol" uniqKey="Sheldon C" first="Carol" last="Sheldon">Carol Sheldon</name>
</author>
<author>
<name sortKey="Winfield, Linda" sort="Winfield, Linda" uniqKey="Winfield L" first="Linda" last="Winfield">Linda Winfield</name>
</author>
<author>
<name sortKey="Wolfington Hallow, Kathy" sort="Wolfington Hallow, Kathy" uniqKey="Wolfington Hallow K" first="Kathy" last="Wolfington-Shallow">Kathy Wolfington-Shallow</name>
</author>
<author>
<name sortKey="Zoog, Kim" sort="Zoog, Kim" uniqKey="Zoog K" first="Kim" last="Zoog">Kim Zoog</name>
</author>
</titleStmt>
<publicationStmt>
<idno type="wicri:source">ISTEX</idno>
<idno type="RBID">ISTEX:14FDC4D2301D29DFA44FF2248B14AE4E90C3B27E</idno>
<date when="1998" year="1998">1998</date>
<idno type="doi">10.1002/mds.870130108</idno>
<idno type="url">https://api.istex.fr/document/14FDC4D2301D29DFA44FF2248B14AE4E90C3B27E/fulltext/pdf</idno>
<idno type="wicri:Area/Main/Corpus">000062</idno>
<idno type="wicri:Area/Main/Curation">000050</idno>
<idno type="wicri:Area/Main/Exploration">001E82</idno>
</publicationStmt>
<sourceDesc>
<biblStruct>
<analytic>
<title level="a" type="main" xml:lang="en">Living with a person who has parkinson's disease: The Spouse's perspective by stage of disease</title>
<author>
<name sortKey="Carter, Julie H" sort="Carter, Julie H" uniqKey="Carter J" first="Julie H." last="Carter">Julie H. Carter</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Oregon</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: Department of Neurology, Oregon Health Sciences University, Portland</wicri:cityArea>
</affiliation>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Oregon</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: School of Nursing, Oregon Health Sciences University, Portland</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Stewart, Barbara J" sort="Stewart, Barbara J" uniqKey="Stewart B" first="Barbara J." last="Stewart">Barbara J. Stewart</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Oregon</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: School of Nursing, Oregon Health Sciences University, Portland</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Archbold, Patricia G" sort="Archbold, Patricia G" uniqKey="Archbold P" first="Patricia G." last="Archbold">Patricia G. Archbold</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Oregon</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: School of Nursing, Oregon Health Sciences University, Portland</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Inoue, Iku" sort="Inoue, Iku" uniqKey="Inoue I" first="Iku" last="Inoue">Iku Inoue</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Oregon</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: School of Nursing, Oregon Health Sciences University, Portland</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Jaglin, Jeana" sort="Jaglin, Jeana" uniqKey="Jaglin J" first="Jeana" last="Jaglin">Jeana Jaglin</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Illinois</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: Rush‐Presbyterian/St. Luke's Medical Center, Chicago</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Lannon, Meg" sort="Lannon, Meg" uniqKey="Lannon M" first="Meg" last="Lannon">Meg Lannon</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Rhode Island</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: Brown University, Providence</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Rost Uffner, Elke" sort="Rost Uffner, Elke" uniqKey="Rost Uffner E" first="Elke" last="Rost-Ruffner">Elke Rost-Ruffner</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Virginie</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Virginia, Charlottesville</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Tennis, Marsha" sort="Tennis, Marsha" uniqKey="Tennis M" first="Marsha" last="Tennis">Marsha Tennis</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Massachusetts</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: Massachusetts General Hospital, Boston</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Mcdermott, Michael P" sort="Mcdermott, Michael P" uniqKey="Mcdermott M" first="Michael P." last="Mcdermott">Michael P. Mcdermott</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">État de New York</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Rochester, Rochester</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Amyot, Donna" sort="Amyot, Donna" uniqKey="Amyot D" first="Donna" last="Amyot">Donna Amyot</name>
<affiliation>
<wicri:noCountry code="subField">PQ</wicri:noCountry>
</affiliation>
</author>
<author>
<name sortKey="Barter, Ruth" sort="Barter, Ruth" uniqKey="Barter R" first="Ruth" last="Barter">Ruth Barter</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Kansas</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Kansas</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Cornelius, Lisa" sort="Cornelius, Lisa" uniqKey="Cornelius L" first="Lisa" last="Cornelius">Lisa Cornelius</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Floride</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Miami, Miami</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Demong, Carol" sort="Demong, Carol" uniqKey="Demong C" first="Carol" last="Demong">Carol Demong</name>
<affiliation>
<wicri:noCountry code="subField">AB</wicri:noCountry>
</affiliation>
</author>
<author>
<name sortKey="Dobson, Judith" sort="Dobson, Judith" uniqKey="Dobson J" first="Judith" last="Dobson">Judith Dobson</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Iowa</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Iowa, Iowa City</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Duff, Jan" sort="Duff, Jan" uniqKey="Duff J" first="Jan" last="Duff">Jan Duff</name>
<affiliation>
<wicri:noCountry code="subField">ON</wicri:noCountry>
</affiliation>
</author>
<author>
<name sortKey="Erickson, Judi" sort="Erickson, Judi" uniqKey="Erickson J" first="Judi" last="Erickson">Judi Erickson</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Nebraska</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Nebraska Medical Center, Omaha</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Gardiner, Nita" sort="Gardiner, Nita" uniqKey="Gardiner N" first="Nita" last="Gardiner">Nita Gardiner</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">État de New York</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Rochester, Rochester</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Gauger, Lisa" sort="Gauger, Lisa" uniqKey="Gauger L" first="Lisa" last="Gauger">Lisa Gauger</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Floride</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of South Florida, Tampa</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Gray, Peggy" sort="Gray, Peggy" uniqKey="Gray P" first="Peggy" last="Gray">Peggy Gray</name>
<affiliation>
<wicri:noCountry code="subField">ON</wicri:noCountry>
</affiliation>
</author>
<author>
<name sortKey="Kanigan, Bernice" sort="Kanigan, Bernice" uniqKey="Kanigan B" first="Bernice" last="Kanigan">Bernice Kanigan</name>
<affiliation>
<wicri:noCountry code="subField">SK</wicri:noCountry>
</affiliation>
</author>
<author>
<name sortKey="Kiryluk, Barbara" sort="Kiryluk, Barbara" uniqKey="Kiryluk B" first="Barbara" last="Kiryluk">Barbara Kiryluk</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Colorado</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: St. Luke's Hospital, Denver</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Lewis, Paula" sort="Lewis, Paula" uniqKey="Lewis P" first="Paula" last="Lewis">Paula Lewis</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Californie</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: California Parkinson's Foundation, Sunnyvale</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Mistura, Kathie" sort="Mistura, Kathie" uniqKey="Mistura K" first="Kathie" last="Mistura">Kathie Mistura</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Michigan</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: Sinai Hospital of Detroit, Detroit</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Malapira, Teri" sort="Malapira, Teri" uniqKey="Malapira T" first="Teri" last="Malapira">Teri Malapira</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Floride</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of South Florida, Tampa</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Pay, Mary" sort="Pay, Mary" uniqKey="Pay M" first="Mary" last="Pay">Mary Pay</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Californie</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of California at San Diego, San Diego</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Sheldon, Carol" sort="Sheldon, Carol" uniqKey="Sheldon C" first="Carol" last="Sheldon">Carol Sheldon</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Floride</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Miami, Miami</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Winfield, Linda" sort="Winfield, Linda" uniqKey="Winfield L" first="Linda" last="Winfield">Linda Winfield</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">État de New York</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: Columbia University, New York</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Wolfington Hallow, Kathy" sort="Wolfington Hallow, Kathy" uniqKey="Wolfington Hallow K" first="Kathy" last="Wolfington-Shallow">Kathy Wolfington-Shallow</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Pennsylvanie</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: University of Pennsylvania, Philadelphia</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Zoog, Kim" sort="Zoog, Kim" uniqKey="Zoog K" first="Kim" last="Zoog">Kim Zoog</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Ohio</region>
</placeName>
<wicri:cityArea>Members of the Parkinson Study Group: Ohio State University, Columbus</wicri:cityArea>
</affiliation>
</author>
</analytic>
<monogr></monogr>
<series>
<title level="j">Movement Disorders</title>
<title level="j" type="sub">Official Journal of the Movement Disorder Society</title>
<title level="j" type="abbrev">Mov. Disord.</title>
<idno type="ISSN">0885-3185</idno>
<idno type="eISSN">1531-8257</idno>
<imprint>
<publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher>
<pubPlace>Hoboken</pubPlace>
<date type="published" when="1998-01">1998-01</date>
<biblScope unit="volume">13</biblScope>
<biblScope unit="issue">1</biblScope>
<biblScope unit="page" from="20">20</biblScope>
<biblScope unit="page" to="28">28</biblScope>
</imprint>
<idno type="ISSN">0885-3185</idno>
</series>
<idno type="istex">14FDC4D2301D29DFA44FF2248B14AE4E90C3B27E</idno>
<idno type="DOI">10.1002/mds.870130108</idno>
<idno type="ArticleID">MDS870130108</idno>
</biblStruct>
</sourceDesc>
<seriesStmt>
<idno type="ISSN">0885-3185</idno>
</seriesStmt>
</fileDesc>
<profileDesc>
<textClass>
<keywords scheme="KwdEn" xml:lang="en">
<term>Caregiver strain</term>
<term>Parkinson's disease</term>
<term>Spousal caregiving</term>
</keywords>
</textClass>
<langUsage>
<language ident="en">en</language>
</langUsage>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">The objective of this study was to examine the experience of spouses caregiving for their spouse with Parkinson's disease (PD) and to determine whether their experiences differed by stage of disease. By using a cross‐sectional design and mail questionnaire data from 380 spouse caregivers across 23 sites of the Parkinson Study Group, key caregiver variables were examined by stage of PD. Three categories of variables‐caregiver role strain (10 measures), caregiver situation (four measures), and caregiver characteristics (four measures)‐were analyzed by using t tests with Bonferroni correction. Specific types and amounts of role strain accumulated as the disease progressed, and they differed significantly between stages (p < 0.05). In the caregiving situation, the mean number of caregiving tasks tripled by stage 4/5. Negative changes in lifestyle plus decreases in predictability in caregivers' lives increased significantly in late‐stage disease (p < 0.05). Caregiver characteristics of physical health and preparedness did not significantly differ across stages of disease. Depression was significantly higher by stage 4/5. Mutuality, the positive quality of the relationship as perceived by the caregiving spouse, declined beginning at stage 2. Caregiver strain is experienced across all stages of PD and accumulates significantly as the disease progresses. This study defines types and amounts of strain by stage of disease, which will be helpful in designing formal intervention trials to provide more effective help for spouse caregivers.</div>
</front>
</TEI>
<affiliations>
<list>
<country>
<li>États-Unis</li>
</country>
<region>
<li>Californie</li>
<li>Colorado</li>
<li>Floride</li>
<li>Illinois</li>
<li>Iowa</li>
<li>Kansas</li>
<li>Massachusetts</li>
<li>Michigan</li>
<li>Nebraska</li>
<li>Ohio</li>
<li>Oregon</li>
<li>Pennsylvanie</li>
<li>Rhode Island</li>
<li>Virginie</li>
<li>État de New York</li>
</region>
</list>
<tree>
<noCountry>
<name sortKey="Amyot, Donna" sort="Amyot, Donna" uniqKey="Amyot D" first="Donna" last="Amyot">Donna Amyot</name>
<name sortKey="Demong, Carol" sort="Demong, Carol" uniqKey="Demong C" first="Carol" last="Demong">Carol Demong</name>
<name sortKey="Duff, Jan" sort="Duff, Jan" uniqKey="Duff J" first="Jan" last="Duff">Jan Duff</name>
<name sortKey="Gray, Peggy" sort="Gray, Peggy" uniqKey="Gray P" first="Peggy" last="Gray">Peggy Gray</name>
<name sortKey="Kanigan, Bernice" sort="Kanigan, Bernice" uniqKey="Kanigan B" first="Bernice" last="Kanigan">Bernice Kanigan</name>
</noCountry>
<country name="États-Unis">
<region name="Oregon">
<name sortKey="Carter, Julie H" sort="Carter, Julie H" uniqKey="Carter J" first="Julie H." last="Carter">Julie H. Carter</name>
</region>
<name sortKey="Archbold, Patricia G" sort="Archbold, Patricia G" uniqKey="Archbold P" first="Patricia G." last="Archbold">Patricia G. Archbold</name>
<name sortKey="Barter, Ruth" sort="Barter, Ruth" uniqKey="Barter R" first="Ruth" last="Barter">Ruth Barter</name>
<name sortKey="Carter, Julie H" sort="Carter, Julie H" uniqKey="Carter J" first="Julie H." last="Carter">Julie H. Carter</name>
<name sortKey="Cornelius, Lisa" sort="Cornelius, Lisa" uniqKey="Cornelius L" first="Lisa" last="Cornelius">Lisa Cornelius</name>
<name sortKey="Dobson, Judith" sort="Dobson, Judith" uniqKey="Dobson J" first="Judith" last="Dobson">Judith Dobson</name>
<name sortKey="Erickson, Judi" sort="Erickson, Judi" uniqKey="Erickson J" first="Judi" last="Erickson">Judi Erickson</name>
<name sortKey="Gardiner, Nita" sort="Gardiner, Nita" uniqKey="Gardiner N" first="Nita" last="Gardiner">Nita Gardiner</name>
<name sortKey="Gauger, Lisa" sort="Gauger, Lisa" uniqKey="Gauger L" first="Lisa" last="Gauger">Lisa Gauger</name>
<name sortKey="Inoue, Iku" sort="Inoue, Iku" uniqKey="Inoue I" first="Iku" last="Inoue">Iku Inoue</name>
<name sortKey="Jaglin, Jeana" sort="Jaglin, Jeana" uniqKey="Jaglin J" first="Jeana" last="Jaglin">Jeana Jaglin</name>
<name sortKey="Kiryluk, Barbara" sort="Kiryluk, Barbara" uniqKey="Kiryluk B" first="Barbara" last="Kiryluk">Barbara Kiryluk</name>
<name sortKey="Lannon, Meg" sort="Lannon, Meg" uniqKey="Lannon M" first="Meg" last="Lannon">Meg Lannon</name>
<name sortKey="Lewis, Paula" sort="Lewis, Paula" uniqKey="Lewis P" first="Paula" last="Lewis">Paula Lewis</name>
<name sortKey="Malapira, Teri" sort="Malapira, Teri" uniqKey="Malapira T" first="Teri" last="Malapira">Teri Malapira</name>
<name sortKey="Mcdermott, Michael P" sort="Mcdermott, Michael P" uniqKey="Mcdermott M" first="Michael P." last="Mcdermott">Michael P. Mcdermott</name>
<name sortKey="Mistura, Kathie" sort="Mistura, Kathie" uniqKey="Mistura K" first="Kathie" last="Mistura">Kathie Mistura</name>
<name sortKey="Pay, Mary" sort="Pay, Mary" uniqKey="Pay M" first="Mary" last="Pay">Mary Pay</name>
<name sortKey="Rost Uffner, Elke" sort="Rost Uffner, Elke" uniqKey="Rost Uffner E" first="Elke" last="Rost-Ruffner">Elke Rost-Ruffner</name>
<name sortKey="Sheldon, Carol" sort="Sheldon, Carol" uniqKey="Sheldon C" first="Carol" last="Sheldon">Carol Sheldon</name>
<name sortKey="Stewart, Barbara J" sort="Stewart, Barbara J" uniqKey="Stewart B" first="Barbara J." last="Stewart">Barbara J. Stewart</name>
<name sortKey="Tennis, Marsha" sort="Tennis, Marsha" uniqKey="Tennis M" first="Marsha" last="Tennis">Marsha Tennis</name>
<name sortKey="Winfield, Linda" sort="Winfield, Linda" uniqKey="Winfield L" first="Linda" last="Winfield">Linda Winfield</name>
<name sortKey="Wolfington Hallow, Kathy" sort="Wolfington Hallow, Kathy" uniqKey="Wolfington Hallow K" first="Kathy" last="Wolfington-Shallow">Kathy Wolfington-Shallow</name>
<name sortKey="Zoog, Kim" sort="Zoog, Kim" uniqKey="Zoog K" first="Kim" last="Zoog">Kim Zoog</name>
</country>
</tree>
</affiliations>
</record>

Pour manipuler ce document sous Unix (Dilib)

EXPLOR_STEP=$WICRI_ROOT/Wicri/Sante/explor/ParkinsonV1/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 001E82 | SxmlIndent | more

Ou

HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 001E82 | SxmlIndent | more

Pour mettre un lien sur cette page dans le réseau Wicri

{{Explor lien
   |wiki=    Wicri/Sante
   |area=    ParkinsonV1
   |flux=    Main
   |étape=   Exploration
   |type=    RBID
   |clé=     ISTEX:14FDC4D2301D29DFA44FF2248B14AE4E90C3B27E
   |texte=   Living with a person who has parkinson's disease: The Spouse's perspective by stage of disease
}}

Wicri

This area was generated with Dilib version V0.6.23.
Data generation: Sun Jul 3 18:06:51 2016. Site generation: Wed Mar 6 18:46:03 2024